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Friday, March 2, 2007

Coming out of the Paxilated Fog

(It has taken me almost three months to put this post together. I've revised some things, updated some things, added some things and deleted some things. I deleted some passages because they seemed like pointless rambling or were too personal. Other things I deleted because, well, I am quite sure there are people in the blog world who dislike me quite a bit [and the feeling is most likely mutual]. After seeing at least one prominent right-leaning blogger being ridiculed by left-wing bloggers for being on anti-anxiety meds, I decided that some details of my experiences should not be posted publicly. I've thought about adding a password function to certain posts so that only people I trust can read them. I may yet do that. I know my blog is just a minor, low traffic blog, so I don't see that I'd be a very juicy target. However, perhaps I'm too cynical, but I have come to never underestimate the duplicity, viciousness, cruelty and two-faced backstabbery that some people can sink to.)

Something has been not quite right with me for quite some time. I started realizing this in early December. I had been feeling like part of me was numb or had gone to sleep. I found myself losing interest in things very quickly that used to endlessly excite me. I found myself unable to stick to any weight-loss regimen, no matter how easy or successful it was, because I would just lose motivation. I just would quit caring. I would try a few soapmaking projects, but they seemed more like a duty ("Gotta get that Christmas soap made!") than like something I really wanted to do. I completely lost interest in working on web design stuff and only did what little I did out of a sense of duty. I found that sometimes I would sit many hours -- or even the whole day -- at my desk at work and leave the iPod unused, listening instead to chatter in the office. I just didn't feel like music.

While I've always been introverted and needed a reasonable amount of quite time to myself, I found that I was never happy with the amount of quiet time I had. It never seemed to be enough, though I was really no busier than I had been in the past.

I have been to church only a handful of times in five months. I never finished my project that I started on my now abandoned faith journal. A few Sundays ago, I went back to church for the first time this year after my Pastor called to check on me and find out if everything was alright. I didn't tell him about all this because, well, I just didn't feel like explaining it at the time.

My work had been slipping. I didn't think as fast as I used to. My supervisor noticed my lack of motivation. (Let me add, my supervisor is a nice guy and was trying to be helpful to me.) I hadn't balanced mine or my mother's checkbooks in months. I just checked things out online. If it looked good, I didn't worry. I stopped keeping up with finances in Quicken a year and a half ago. I kept swearing I would start again and I never did. This is something I've always done for years and years. I pay my bills online, but sometimes I would forget to pay something. I had the money, I just forgot and let it slide. I can't emphasize enough how unlike me this is. I have always been very responsible with money and my finances.

In general, I have been unmotivated and apathetic. I did some things I've wanted to do for a while, like LASIK surgery or buying a new car, to jumpstart myself, but while I'm happy with these things, they would soon fade into the background of my life. Even my dreams changed. Vivid colors were replaced with drab, muted colors. The dreams were almost sepia-toned, like I was seeing things through a dirty window, and they were vaguely disturbing and sometimes apocalyptic.

Like I said, I've felt like something was wrong with me that I couldn't quite put my finger on. Then, through a series of events that I don't believe are coincidental, I found out what was wrong, where my life started going off the rails, and what I could do about it.

I started taking Paxil around two years ago...in January of 2005. My doctor gave me some samples of it to try because I pretty much had a nervous breakdown right after New Year's. I've always had problems with anxiety and depression, but this time it was very, very bad. I had just had a horrendously awful Christmas season, which culminated in my having to put my beloved dog Coco to sleep. I was busy trying to arrange repairs of the damage to my house caused by Hurricane Ivan. I was taking bids from roofers, worrying about getting some more money from the insurance company, the whole deal. Shortly after Coco's death, my sister and mother get me this cockatiel to help me get over Coco's death. Forcing another pet on me so soon was the wrong thing to do. I was angry and resentful -- not at the bird because it wasn't her fault, but at my family. They meant well, but they made things worse. I had horrendous insomnia that was made worse by the fact that this bird would carry on -- loudly -- in the early morning hours.

So anyway, my doctor gave me a month's worth of samples of Paxil CR 12.5 mg. After a week or two, I was feeling much better. My mood swings were gone, I didn't get upset as easily and I could sleep again. I didn't have any apparent side-effects. People noticed how my moods had evened out, and this too was encouraging. When the samples ran out, I asked my doctor for a prescription.

I was concerned about weight-gain, and I was going to Weight Watchers at the time. I swore I would quit Paxil if I gained weight.

All seemed well for several months. It did seem like I had to struggle harder to lose weight, but I thought I just wasn't trying hard enough. I gradually quit going to Weight Watchers (even after paying for a year's membership). The weight I lost came back. I tried other diets, like Nutrisystem, and while they worked wonderfully, I could not stay motivated. I simply didn't care enough to stay motivated.

I thought about quitting Paxil, but I had read about the horrible withdrawal symptoms and I was scared to stop suddenly. Despite the weight issues, I felt like it would be vain of me to stop taking something that apparently was helping me just because of my weight. I was also afraid my old problems would come back if I stopped. In the meantime, they had taken the controlled-release tablets off the market and I was taking the regular 10mg tablets. It seemed like those pills didn't work as well and I was glad when the CR tablets came back on the market about a year ago.

In the meantime, I gradually slipped into this fog that I lived in. My emotions gradually became blunted. I rarely enjoyed good belly-laughs. Sometimes, you need a good cry and it was very hard to do that either. I might chuckle at something that I would normally find pee-in-your-pants funny. I might weep a bit at things that would normally have me bawling. But everything was muted. My anger was mostly tamed to where I would get a bit miffed and then get over it. I would avoid situations that might enrage me. Of course, I believe this to be good thing. I don't like for things to make me angry and get to me. But the price I payed for that was the blunting of all my other emotions as well. I also started to become a less affectionate and even aloof person.

Anyway, after putting my finger on the problem -- that my mind has been in a Paxil-induced fog for nearly two years -- I decided to gradually wean myself off Paxil. I talked to my doctor to make sure he knew I was doing this. He had no problem as long as I didn't stop cold turkey, which I wasn't about to do.

I started by taking the Paxil every other day rather than every day. I did this for the month of December. Then in January, I started taking it every three days. In February I took it every four days. Now, in March, I will take it every five days. I will continue with this pattern until my current bottle is empty.

As I reduced the dosage, at first, I noticed no difference. Then some very subtle but definite changes started occurring.

The color came back to my dreams again. While many are still somewhat disturbing, they are not these epic, apocalyptic dreams that had become so common. I can't remember the last time I had a really lovely dream...one that I tried to hold on to before waking up. One that left me smiling upon remembering it. I had a really terrible nightmare last week -- one in which I woke up with my heart pounding. I could remember it when I first woke up, but now I don't remember it.

I've gone through periods of severe depression intermittently. That's one reason I've been on hiatus.

Right now, I'm having mood swings. For a while, I went through a period where I would shoot up into a towering rage over almost nothing. I haven't had these "hyper-rages" lately, but I do oscillate between being irritable, depressed and then almost giddy within the same hour. I go through periods where loud or shrill voices really irritate me. Things I used to not pay any mind to, like people yammering about movies and TV shows around the office, sometimes send me into an eye-rolling sulkiness. I wish they'd just shut up. At times, loud but normal noises -- doors slamming, drawers slamming, dogs barking, etc. -- startle and irritate me. These things used to not bother me. Sometimes I don't like to talk or listen to people much. It seems like a chore. All of these things come and go.

It's all a mixture of good and bad. I enjoy music a lot more and have gotten interested in maintaining my Live 365 station again. I have had more good belly-laughs in the past two weeks or so than I had for the two years I was on Paxil. However, I also get very depressed and fatigued at times and sometimes I get terrible headaches. I have had problems with insomnia again, especially when something upsets me and gets to me.

But again on the plus side, I feel my creativity returning and I am genuinely getting inspired about making soap and bath products lately. I've also started playing around with graphics and web design stuff again. Not a lot, but at least I'm feeling interested again. I'm now keeping up with my bills and am catching up on things like balancing checkbooks. I can't believe the way I let things go. Gradually, my thinking is becoming clearer.

The point of this post is not to say that Paxil is bad and that nobody should take it. I have read some websites about quitting Paxil and they have been helpful. So far, I have not had the worst withdrawal symptoms. When I stop taking it completely, those may happen. But maybe it won't be so bad since I have been weaning down so slowly. The Paxil helped me when I was going through a rough time, but I probably should have stopped taking it once I was over the rough patch. I imagine Paxil can be very helpful to people who have more severe anxiety and depression problems than mine. I am only speaking for myself here and no one else.

Comments

((hugs)) Thanks for sharing all that! I know it can be hard to do, but it's sharing that also helps us know we're not alone in the darkness, in the fog, in the bad times. Hope you get stuff sorted out for you so you can be wholly *yourself*.

Posted on March 2, 2007 at 7:21 PM

Hi Barb,

Thank you so much! Yes, it was hard to write and hard to get up the nerve to post it. But I'm glad I did...I feel a sense of relief now.

I am starting to feel more like myself again...with both the good and the bad.

Again, thank you for your support and encouragement. :-)

Posted on March 2, 2007 at 9:22 PM
Maggie4Life Author Profile Page Gravatar.com

Susan,

thank you for sharing an experience that many of us have known. I have been taking Zoloft since 2001 and I am almost ready to discontinue its use. I am already at the stage where I forget to take it, and I have run out of pills.

The way in which the SSRIs work is that they increase the amount of serotonin in the brain because it seems to be deficient. We can produce more of the serotonin by getting out into the sunshine. Yes I get depression and at least if I know that I am slipping into depression I can take appropriate steps to handle the situation.

FYI I have been diagnosed with a form of arthritis and when I am in a minor flare I get fatigued. There is not a lot that I can do about the fatigue except to take a nap. My last bout of depression coincided with a fall and I have fractured my coccyx for the second time. It is painful and I am even less able to sit on the wooden pews in the church, but I have learned to laugh about the situation and call it "wooden seat syndrome". I use the "ouch scale" to measure my pain and I use a walking stick on occasion to take care of the "ouch factor".

You might want to investigate the possibility of joining a 10 step program like AA but geared to mental health as a means of assisting you in times of depression, or you might like to seek to do some CBT with the aid of a psychologist. These approaches can be quite helpful when going through the mood swings.

If your mood swings are due to hormonal imbalances due to age (like going into perimenopause) then there are other medications that might help you with the symptoms that you are experiencing.

Sometimes we do get a little bit overwhelmed by events in our lives. I dare say that having damage to the house due to a hurricane would be very traumatic, especially if it was on top of the death of a beloved dog or cat.

Believe it or not, I continued going to daily Mass in spite of my depression. I continue to find that it is the one thing that gives me incentive to greet the day. It is not always easy to make that decision to get up and attend Mass, but I get up at 5.30 every morning to prepare myself prior to leaving to go to Mass.

Desert experiences are hard but when we finally make it to the other side we discover the true Light that is waiting at the end of the tunnel.

Posted on March 3, 2007 at 3:07 PM

I have fought a combinationof insomnia and depression/mood swings my whole life. I've tried several of the antidepressents, I didn't like the side effects. Then I tried Trazodone. It is something of an antidepressent but mainly it helps me sleep. With better rest I don't get depressed near as often. Considering that I made my living wearing a gun depression wad a bad thing.
Since there is no such thing as "one size fits all" in the metal health gig it may not work for you. Then again, it just might.

Posted on March 3, 2007 at 8:30 PM

The thing about fog: it obscures the dirt, but also the flowers.

I wonder sometimes if we aren't overdosing on these things. Some years back, I was prescribed Ativan for similar reasons, but I insisted on the smallest dosage available, mostly out of fear of becoming a junkie or something. I know the drug has an effect - all I have to do to notice it is to miss one day - but it's fairly mild. And really, I'd rather have a few ups and downs here and there than entrust the entirety of my consciousness to the actions of a little white pill.

Posted on March 4, 2007 at 10:49 AM
Maggie4Life Author Profile Page Gravatar.com

I agree that when there are minor ups and downs people should not be prescribed these drugs. I would stay well away from Cymbalta for that reason. I have heard of people who became worse when placed on Cymbalta, but doctors are prescribing it to people who have serious depression due to pain which is the result of a particular form of arthritis.
I have been diagnosed with Clinical Depression, that is I have much more than a few ups and downs. There are pain issues involved, plus I have trouble relating to people, and I am easily hurt. The whole thing is not easy because my medication could also be the cause of my fatigue, but on the other hand, going into an arthritis flare can cause fatigue.

If the problem is minor you can always take the OTC herb, St. John's Wort. My doctor tried me with the St. John's Wort before putting me on the Zoloft. The alternative is to go and seek some therapy from a counselor who knows CBT. The medication should be a last resort and only for those who really do have serious depression.

The kind of fog that I experience is brain fog, but I am well aware of the other kind of fog because I am the same when it comes to dealing with certain bills etc. I have trouble dealing with sending out Christmas cards because I tend to get depressed around that time of the year. So I do relate very much to Susan's experience when it comes to this fog.

Posted on March 4, 2007 at 2:49 PM

Barb, Maggie, Peter, & Charles,

Thank you so much for your advice and your understanding...I really do appreciate it. It is good to hear from people who understand.

I think my anxiety/depression issues are genetic. Other family members have/had similar problems. It was very bad when I was a teenager. My parents thought I was just a surly, reclusive teen, but it was more than that. Since then, I've gone through good and bad periods. Usually major life events, like losing loved ones or going through extreme stress will cause me to have breakdowns.

Peter, if I the stress induced insomnia returns (and believe me, I know how awful it is), I will ask my doctor about Trazodone. Charles, your statement: "The thing about fog: it obscures the dirt, but also the flowers." That's a wonderful way to put it! I feel like I lost my creativity gradually over the past two years and that it's just starting to come back. Maggie, I had a friend suggest Cymbalta to me since I also have problems with chronic pain. Thank you for the warning about that.

Posted on March 4, 2007 at 8:40 PM

Oddly enough, my husband and I are both on Cymbalta, and it works fairly well for us. The duality seems to do us good; it works on the serotonin but also on another brain chemical too. I will admit it's strong, but my husband and I have had serious depression problems.

Posted on March 5, 2007 at 8:09 AM

Hi Barb,

I might try the Cymbalta after I get off Paxil if I think I need something just to see how it works on me. Maybe my doctor can give me some samples or something.

Posted on March 5, 2007 at 8:35 AM

Hm... "brain fog" pretty much describes my life as it has been for more years than I can remember! Perhaps I need whatever is the opposite of Paxil.

Seriously, I think my problems all stem from overuse of caffeine. I may have to give up my beloved coffee. Case in point: I am currently sitting at home because I couldn't get any sleep last night -- I went to bed after midnight (I have to be up by at least five a.m.) and kept waking up every half hour to pee. (That's probably TMI but oh well.) Now I am not in the least bit tired, oddly, so stress at work, or rather, the stress of getting to work (I have to take three buses, and am basically stuck where I am until September, so...) is probably a factor. But I think it will be better once I get my sleep cycle straightened out. So I am going to seriously try no caffeine after noon, and see how that works.

One more thing: I wonder if those apocalyptic dreams you were having were your body's attempt to alert you to a problem -- kind of a last-ditch "Help! Wake up!" sort of thing. I usually don't have dreams I can remember, and when I do, it's usually because something is wrong with me.

Posted on March 6, 2007 at 8:06 AM

Hi Andrea,

I know what it's like to need to call in sick because of a night without sleep for whatever reason. I need caffeine (in the form of Coke/Diet Coke) to get started and to keep going through the afternoon (I often get the afternoon "blahs" -- I sometimes wish we lived in a culture where everything shuts down for an afternoon siesta). I try to avoid caffeine after around 8:00 or 9:00 in the evening.

I think you are right about the apocalyptic dreams. Shortly before I realized I needed to get off Paxil, I had a major, epic apocalyptic dream, in the usual drab, sepia-like colors.

The nightmare I had a couple of weeks ago was not apocalyptic and was in vivid color. According to the websites about quitting Paxil, vivid nightmares are pretty common during withdrawal. The only thing I remember is that it didn't involve anything happening to me or anyone I know. Rather, I was seeing something awful (what, I can't remember) involving people I don't know and was unable to do anything about it.

Posted on March 6, 2007 at 12:13 PM

I'm glad you are feeling better Susan and thanks for sharing with us. I've never been on Paxil but it's good to hear about what real people experience aside from the advertising or from what a doctor tries to tell you in 30 seconds!

Posted on March 8, 2007 at 5:00 PM

Hi Elena,

Thank you! :-) I just reduced my dosage again to every five days. I've been really moody and not feeling well physically the past few days. I've had some other weird things happen as well. I will probably post some more on the subject as an update on my progress.

Posted on March 9, 2007 at 8:15 AM

I would highly suggest that you consider supplementing with omega-3 fatty acids (fish oil, ground flaxseed) as it has been shown in several studies to help regulate brain chemistry. Also, magnesium can be very helpful, especially in reducing those anger/rage episodes (in particular the ones that seem to happen between 4 PM and 7 PM). Aromatheraoy can help a lot with the insomnia - I use a product called Sleep Balm from a company called Badger Balm out of New Hampshire. What this particular combination does is to slow down the racing thoughts/can't turn off the brain/can't get to sleep cycle that so often leads to daytime sleepiness.
Also, look at your food patterns. Your carb intakes can affect the permeability of the blood/brain barrier to serotonin. This is how depression and weight gain can go together. A good book on this is "The Serotonin Solution".
And remember to go very slowly on weaning off the Paxil!

Posted on March 15, 2007 at 9:10 PM



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